It's been a whirlwind of a week. Seriously. I have yelled. cheered. and cried. I sat in the pediatrician's office, listening to words like "curable", "recovery rate", "leukemia", "blood diseases", not believing I was really there, wanting to just fast forward to the next day. I have hugged my kids more than ever before. I have been more thankful for my family, our health, and our parents living nearby, than I have ever been before. I have talked to the doctor after hours more often than I ever care to again. I watched my brave, brave little guy have his blood drawn, surrounded by the staff at VCMC who wanted to give "Diego's" grandson special treatment. And I felt the most wonderful wave of relief upon hearing the results of those tests. NORMAL.
All because of a rash. A rash that has shown up three times in three weeks. A rash that when googled, is the only one that brings up the words "life threatening", and "requires immediate treatment". A rash that we still don't have an answer for. And call me crazy, but I just don't like hearing multiple doctors say "I've just never seen this before". BUT, the dangerous causes have been ruled out. There is likely nothing really wrong. We will wait to hear what the specialists say next week.
After all of that, we are all just really ready for the weekend. I've had my dose of worry and stress for the week. For the year actually. I know that as a parent, there are going to be a lot of times when I'm going to worry. And I know that what we experienced this week is nothing even remotely compared to what parents of kids with life threatening diseases have to deal with on a daily basis. But as a mother, you never want to hear those words cross the doctors lips when they are talking about your child. I feel like I learned something this week. About myself. About being a mom. And about my kids. I also think that I appreciate and love my precious boys even more, if that is even possible.
Hope you all have a happy weekend. I might be scarce on here for awhile. Spending a little more time with my kiddos.
Suzanne! I am so sorry that you were going through this, most likely when we saw you last week. Please let me know if & how I can pray for you & the family.
ReplyDeleteHugs from Olivia & Grace
Yikes!! That is scary stuff. Hope you get an answer soon. Hope you are enjoying your weekend with your fam!
ReplyDeleteOh wow, Suzanne...I think I stopped breathing until you said "it's normal". I can't imagine how scared and worried you all must have been. Thank goodness the worst has been ruled out.
ReplyDeleteAnd just my two cents {for what it's worth...and that is literally about two cents}, my daughter and I have sensitive skin and bad allergies. New and strange rashes are often cropping up {often in the same areas} and many doctors have told me "we've never seen anything like this before". I have learned to just put some hydro-cortisone on it an ride it out. But again...I am certainly no professional and that's only worth two cents!
Suzanne, sweetie! Wish I knew what trauma you have been going through. Please let me in the loop. If I can't do anything - I can pray. I am tough, been through a lot, I can take whatever is out there, so don't try to protect your grandma. I am here for you.
ReplyDeleteLove and hugs,
Oh my gosh! I'm so sorry you have had to go through this :( I hope you were able to relax over the weekend. We'll be praying for you guys.
ReplyDeleteThanks everyone for the kind words. We heard from the hematologist today, and they've ruled out any and all serious causes. The rash was caused from straining to much during tantrums/crying. Nothing to worry about. After all of this, I am glad my doctors were thorough even though it scared the heck out of me. I just hope we don't have to go through this ever again!
ReplyDeleteWow, Suzanne! I'm so glad to hear it's all ok. Apparently my niece started doing the same thing a few weeks ago...breaking out into hives after a tantrum. So weird! Hope you're having a more relaxing week this week!
ReplyDelete